New Research Study For Adults With Retinitis Pigmentosa (RP)

Below is a pre-screening questionnaire to see if you minimally pre-qualify to join the registry. The questionnaire will ask you questions about your health and could take up to 5 minutes to complete. Completion of this questionnaire is completely voluntary. 

If you meet the criteria, you will be added to our research community and will be connected to an RP study and a trial doctor once the screening process starts. The trial doctor will provide you with additional information and answer any questions.

Unfortunately, your responses do not match RP studies that we have on file.

There are study-specific requirements for every clinical trial to ensure the safety of the participants that are involved. The reason most patients do not qualify for this clinical trial is because they have a medical condition or are taking medications that may interfere with the study drug and could negatively impact their health.

Just because you do not qualify for this retinitis pigmentosa study, does not mean you won’t qualify for another retinitis pigmentosa study. All clinical trials being conducted in the United States are listed at https://www.clinicaltrials.gov.

The information you have provided will not be shared. Thank you for your time and for expressing your interest in this registry.

Congratulations, you may be a suitable candidate for an RP study.

Once screening is active, a representative from the Responsum Health team will connect you with a dedicated research team near you, including the doctor who is conducting the study.

The trial doctor will:

  • Provide you with additional information about the study
  • Answer any questions you may have
  • Schedule your first visit and determine if you qualify

Before participants join this clinical trial, they will be given all the information about the study. This includes an information sheet and an informed consent form. No study-related procedures will be performed unless participants give written consent, including signature and date.

In the meantime, check your email (including junk or spam folders) for updates and useful information from us regarding the clinical trial process, information about retinitis pigmentosa, and more!

Remember! Joining a clinical trial is completely voluntary. You can change your mind and decide to no longer participate at any time and for any reason.

Do you know anyone else (such as a family member) who has been affected by retinitis pigmentosa and may be interested in participating? If so, please send them this link for information about joining this registry:

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