While a handful of trustworthy online encyclopedia or news sources exist online, only Responsum Health, in partnership with the leading patient advocacy groups, offers patients a reliable search engine, expert-vetted content, and readable summaries of content from across the global Internet.
We have collected answers to important questions that patients, caregivers and partners have asked us.
Is my data secure? Is it safe for me to share here?
Yes. The Health Insurance Portability and Accountability Act (HIPAA) sets the standard for sensitive patient data protection. Companies that deal with protected health information (PHI), including Responsum, are required to have physical, network, and process security measures in place and follow them to ensure HIPAA Compliance. As a HIPAA-compliant platform, Responsum takes appropriate Administrative, Physical, and Technical Safeguards to ensure the confidentiality, integrity, and security of protected health information (PHI). The HIPAA Privacy Rule requires strong safeguards to protect the privacy of personal health information, and sets limits and conditions on the uses and disclosures that may be made of such information without patient authorization. The Rule also grants patients rights over their health information, including rights to examine and obtain a copy of their health records, and to request corrections.
Also, while Responsum allows for users to maintain anonymity by setting up patient accounts under fictitious names, we ensure that community comments left on articles are respectful and reserve the right to suspend privileges of anyone who violates the rule.
Who determines the content I receive in my Newsfeed? How do I know it is unbiased?
Responsum’s medical experts treat each patient as a unique research project. For every user, Responsum searches and summarizes the most relevant information from the world’s leading medical journals, newswires, patient blogs, provider databases and clinical trial registries.
Importantly, our partnership with advisory councils made up of the lead experts on the field for each disease area provides Responsum users with the confidence that the content they are receiving has been vetted by the best on the business. Additionally, Responsum’s methods of research, analysis and writing are consistent with the highest standards of medical and legal research today. Companies or foundations that underwrite Responsum’s ability to provide this platform to patients through advertisements, grants or support are provided zero opportunity to influence the selection of content or the summaries we provide. Each patient’s Newsfeed is determined by their unique characteristics alone.
Any commercially developed content that we may provide, such as advertisements (if these are ever presented), will be clearly marked with the name of their sponsor.
Working with Responsum effectively puts some of the world’s leading researchers on your case, leaving you to concentrate your energies on bettering your health, or the health of your loved one.
How is this different from other chronic illness patient platforms?
Responsum is the only patient platform that monitors, searches and curates the Internet and then provides a personalized Newsfeed of article summaries that patients are encouraged to read, share and comment on. Additionally, Responsum wraps the Newsfeed into a comprehensive platform that enables patients to correspond with their Care Team, as well as find local patient support services, financial assistance, and advocate for healthcare policies that impact their treatment. You can read more about all these functions in Welcome to Responsum.
What do you do with my Personal Information?
We use personal information that you provide to us in several ways. First, we use it to confirm your account, to better understand who is visiting our website and using the platform, and to enable us to present content in the Newsfeed that is customized to your profile.
And if a Responsum patient explicitly grants privileges to a loved one, caregiver or healthcare provider to see or edit their profile or Patient One-Sheet information, we will provide that access.
Otherwise, we do not share, sell, or otherwise disclose personal information that is individually identifiable (including your e-mail address or your personal information) to any entity without your prior consent or request, except as required by law. For example, we will not share our email list with other companies or organizations. We may, however, provide other entities with aggregated data about our users that does not contain contact or other individually identifiable personal information. Thus, for example, we may inform an organization of the number of Responsum users with a particular diagnosis or in a particular geographical region.
How does Responsum get paid?
The Responsum platform and its services are provided free to patients and other users, and as a startup, we do not yet have financial sponsorship.
Our intent, however, is that someday soon our costs will be underwritten by grants from a combination of supporters including foundations, companies and non-profits.
What do I get out of all this?
Patients who use Responsum get – at their disposal and at no cost – a team of professional medical researchers and writers, backed by state-of-the-art technology, to scour, curate and “translate” the Internet for news, blog posts, discoveries and lifestyle tips about IPF. Rather than constantly performing your own research and analysis, Responsum will do it for you … today and everyday … so you can spend your time and energy on living and getting your health back.
Additionally, Responsum’s organizing, scheduling and support tools let patients, and their care team, manage their health needs efficiently. Getting a diagnosis of IPF is life changing, and Responsum can help you to better deal with it.
Can I share this with my friend / supporters / doctor / specialist / caregiver? Can they participate too?
Yes. Responsum is intended to be used by a patient and their care team. This can include friends, family, professional caregivers or healthcare providers.
Are your moderators and curators paid?
Mostly, yes. Our Content Development team is comprised of a professional, paid group of medical professionals and experienced healthcare writers. Sometimes, our Newsfeed articles are provided as blog posts by IPF medical experts on a volunteer basis.
Why did you call it Responsum Health?
Responsum is Latin for “answer,” as well as a term used in both Roman Catholic and Jewish traditions to describe answers provided by scholars on issues of great importance. For patients today, we hope that Responsum helps by providing a pathway to answers for their most important questions.
Why a hummingbird?
Did you ever watch a hummingbird sipping pollen from a flower?
They are beautiful, graceful, and seemingly effortless in the way they defy gravity.
At the same time, you can’t help but notice they are also fragile, and working incredibly hard just to maintain their appearance of weightlessness.
At Responsum Health, this is how we imagine the patients who reside in our various communities: elegant, industrious, hopeful… and flapping their wings as fast as they can.
These patients, these hummingbirds, are our inspiration. Giving wind beneath their wings is our mission.
What can I do to suggest a new diagnosis for Responsum to support?
We hope that one day, there will be a Responsum for every patient with a chronic illness. We are always looking to develop partnerships with patients, patient groups, foundations and industry supporters in new therapeutic areas. Simply contact us with your suggestion and contact information.
How can I contact Responsum?
To contact a human being at Responsum, simply send a message to us at email@example.com and someone will get back to you quickly.