Earlier this month, our Alliance Ambassador Claudia Alarco Alarco and I ran an exhibit booth at the 5th Biennial Pulmonary Fibrosis Foundation Summit in San Antonio, Texas. Over 300 patients attended this incredible gathering, along with large numbers of health care professionals, researchers, and academic leaders. The PFF put on an impressive event: for three days, it was the true staging area in humanity’s war with this dreadful disease.
This Summit also represented an important turning point for those of us at Responsum Health, where we’ve been working in relative obscurity – alongside dozens of pulmonary fibrosis patients – to develop a better way for patients with chronic conditions to harvest the Internet for useful, current, and trustworthy information.
This was the third year in a row that we participated in an annual PFF event (including last year’s volunteer gathering in Chicago) but it was the first since we launched the Responsum for PF app.
What a difference a year makes!
Whereas in previous years, we used our PFF exhibit booth to recruit patients for our pilot projects and to introduce the company to the patient community, this year we had an app to share. Over 100 patients downloaded it while we were there!
And in addition to all the new subscribers – which excited us to no end – Claudia and I were ecstatic to meet so many patients and caregivers who had already downloaded the app and told us that they were already using it and getting great benefit from it. This validation – from patients, caregivers and even a few doctors – gives us the confidence to know that we are moving in the right direction, and that we are beginning to make a real difference in peoples’ lives.
From the very beginning, we’ve relied on the generous time and support of patients and other contributors to develop this revolutionary tool to harness the web. Now, we rely on them for their continued inspiration as they fight this disease every day, but now, with the knowledge that they have Responsum for PF in their holster.
We’re in this together.
Founder & CEO