T Anthony (Tony) Howell joined Responsum in the fall of 2019 as a Senior Advisor after working in print and digital healthcare information for nearly twenty years by founding and building medical publishing companies and online social communities. Tony’s expertise is built upon the shoulders of giants in patient advocacy, medical information and social networks; understanding the needs of the communities by listening to their constituents and bringing innovation to the space. Instead of serving advertisements based on preferences, Tony sought to bring more value to the community by serving curated knowledge. This success has benefitted multi-stakeholder communities in sickle cell, Duchenne muscular dystrophy, amyloidosis and Graves disease.
Tony is also a proven talent for nurturing and closing business and developing deeper partnerships with biopharma companies to foster long-term win-win relationships. Tony is involved with the social media data collection aspects of the FDA’s Patient Focused Drug Development guidances, a member of the Rare Disease Legislative Advocates Regulatory Committee, founding member of the Coalition for Data Rights & Privacy, a founding member of The Aurora Project, and a member of the Patient Focused Medicines Development, having spear-headed the acceptance of a knowledge community into the peer-reviewed “Book of Good Practices.”