Responsum Health and IgA Nephropathy Foundation Announce New Partnership
Collaborative effort to drive awareness of rare kidney disease that leads to end-stage renal disease
[WASHINGTON, D.C., Dec. 3, 2020] — Today, Responsum Health (Responsum), an innovative developer of personalized patient apps and chronic disease knowledge communities, announces a new partnership with the IgA Nephropathy Foundation, a patient-focused non-profit organization for Immunoglobulin A nephropathy (IgAN) dedicated to both the funding of research for IgAN and patient advocacy.
Through this joint effort between Responsum Health and the IgAN Foundation, the goal is to continually improve available education and support for those who are impacted by IgAN. Through the Responsum for CKD app, professionally vetted information on IgAN will be distributed to the chronic kidney disease community, as well as syndicated to those with an IgAN Foundation membership.
IgAN is a form of chronic kidney disease in which an antibody blood protein, Immunoglobulin A, accumulates in the kidneys and causes damage. It is considered a rare disease by the National Organization of Rare Disorders, which means it affects less than 200,000 people in the U.S.—though it often goes undiagnosed.
In raising awareness and education on IgAN and empowering patients through community, knowledge, and resources, Responsum Health supports the IgAN Foundation’s mission to encourage additional research on IgAN. As many as half of those with IgAN will develop end-stage kidney disease, which limits treatment options to dialysis and/or transplant. For this reason, increased support for IgAN research is necessary to better understand the disease, lead to improved diagnosis, and an eventual cure.
“Partnering on this initiative with the IgAN Foundation represents an important step towards the fulfillment of our vision to leverage Responsum’s uniquely impactful digital platforms—in collaboration with the leading subject matter experts in chronic disease—to expand and improve patients’ access to trustworthy information,” stated Founder and CEO of Responsum Health Andrew Rosenberg. “We are excited and honored to be working with such a highly respected organization.”
“We are excited to partner with Responsum Health. This opportunity will bring valuable information to the patients we serve much faster than we possibly could,” said Founder and Executive Director of the IgAN Foundation Bonnie Schneider. “There is so much happening in our IgAN space that time is of the essence to educate our patients. This will allow them to make empowered decisions about their disease journey.”
About Responsum Health
Responsum Health’s mission is to build and support online knowledge communities for chronic disease patients. The company offers a free, revolutionary patient engagement platform that monitors, searches, and curates the internet to generate a personalized Newsfeed of article summaries, which are vetted by Responsum’s patient group partners. Each comprehensive platform enables patients to comment on and rate articles, as well as share them with their professional care team and loved ones. Responsum also helps patients to better organize their health information, find local patient support groups and services, and support one another through a moderated, disease-specific social wall.
About IgA Nephropathy Foundation
The IgA Nephropathy Foundation’s mission is to be a patient-centric organization focused on finding a cure for Immunoglobulin A nephropathy (IgAN). Using the power of the patient community, the IgAN Foundation is focused on funding research, using patient advocacy to empower IgAN patients, and building a network of support.