Responsum Health Tackles Challenge of Building Information Hub for Patients with Uterine Fibroids

Responsum Health Tackles Challenge of Building Information Hub for Patients with Uterine Fibroids

Responsum Health Tackles Challenge of Building Information Hub for Patients with Uterine Fibroids

On August 13, Responsum Health announced its commitment to building a new patient platform for uterine fibroids—a devastating and under-recognized chronic condition that affects the lives of millions of women, both in the U.S. and worldwide.

In partnership with two leading fibroid advocacy organizations, CARE About Fibroids and The White Dress Project, we aim to provide people with a trusted source that contains vetted information about treatment options, support resources, and lifestyle tips, much like we do for the pulmonary fibrosis community.

Unlike pulmonary fibrosis, however, which is a semi-rare disease with approximately 130,000 diagnosed cases in the U.S., uterine fibroids impact the lives of tens of millions of American women, often leading to infertility, emotional instability, and economic distress.

Working with uterine fibroids

When we developed Responsum Health’s approach to informing, empowering, and building patient communities around their shared chronic conditions, we wanted to develop an approach that could be of equal value to patients of rare, semi-rare, and more common illnesses. Uterine fibroids will put that hypothesis to the test.

We are particularly excited about tackling the challenge of building an information hub for patients with uterine fibroids because the need is so great. It is mind-blowing to think that there is such a vast lack of awareness around a health condition that impacts such a large number of people.

What we do know is that uterine fibroids have a significant impact on a person’s quality of life, including fear regarding relationships, sexual function, body image, loss of control, and hopelessness. What we still need to better understand is how patients perform under the various treatments that are currently available to them, and this is where our partnership with Duke will come in.

How we aim to help the fibroids community

Through our Responsum platform, and with the participation of an engaged community of UF patients, we will have the ability to glean valuable insights into their lived experiences. With the information about their symptoms, rate of recurrence, and the ability to conceive, we will assist the medical community with developing better treatment protocols and help researchers to better target their efforts.

Most importantly, we’ll be helping to inform, empower, and organize patients with uterine fibroids so that they can become better advocates for their own health. That’s what we consider a real win-win.

I hope you’ll continue to follow our progress on Responsum for Fibroids, and I look forward to your support.

2 thoughts on “Responsum Health Tackles Challenge of Building Information Hub for Patients with Uterine Fibroids”

  1. Debby Quashen says:

    I’m new to this site. I used to be able to sleep about 9 hours a night, now I’m lucky if I get 5 hours of sleep, because of the pain, the pressure on my spine and organs from the fibroids, which radiate up to my right arm and shoulder, which I can barely move anymore. I wasn’t sleeping well to begin with
    I happen to be sound sensitive. With all of this including pain from other things I don’t sleep.

    1. Jackie Dreyer says:

      Hello, Debby! We really appreciate you sharing your fibroids experience with us and how your symptoms are affecting your quality of life. I believe that you’ll find our Responum for Fibroids app helpful as a way to learn new ways to manage, improve, and/or alleviate your symptoms, all while getting to hear from other women about their experiences, too. Have you joined yet? If you have any questions or concerns, please don’t hesitate to ask. – Chief Content Editor, Responsum Health

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